Hi guys
Two and half years ago I visited a specialist (neuro - otologist) who after my many years of unsuccessful doctor visits and different hospital visits told me he will treat me and give me my life back. I was overjoyed and optimistic and was supposed to visit him 3 months later to start my treatment. Unfortunately things didn't go quite to plan as I could not get a referral back to see this man. I am glad to say after 2.5 years of miscommunication and waiting I am finally being referred back to this specialist to begin what I hope will be the treatment that will finally rid me of this Vertigo hell.
Each journey I take to see the specialist will take around 10 hours of traveling time (about 5 hours each way) which is hell of a lot of travel time for a 1 hour appointment and will be especially uneasy if I have one of my bad days but I am willing to do it if it means I don't have to feel like this anymore. I need to do it. So there you have it some good news at last. There is still hope.
Swimmyhead
Thursday 20 November 2014
Friday 14 November 2014
Spinning Sensation
Hi Guys
It's been quite a crappy week in all honesty. I sit here typing this feeling extremely groggy and disorientated. I have only been awake one miserable hour and mornings don't tend to be good balance wise anyway after all that lying down we call sleeping ( isn't sleep supposed to recharge and refresh our battery's) not in my case or so it seems. I guess my symptoms have been much more intense again these past several days which I can't say has been easy. A week last Thursday I was doing ok-ish but by Thursday evening all my visual and balance issues came back full force and actually frightened me a little more than usual as the symptoms felt a little different than they have for quite sometime. The difference was that I experienced what I can only call as mini spins ( I don't know how else to describe the experience). I felt on edge, confused and disorientated.
Basically that rotational,spinning sensation increased to a different level a very uncomfortable level. An intensity reminiscent of my early years living with this thing. I spent the evening standing up then sitting down only to stand up again and walk around the house trying to get some sense of normality and grounding. It's a very disconcerting experience only fellow sufferers will understand.The spinning sensation was to the left. This rotational feeling was so prominent back in the early years of my dizzy journey. I do not miss it.
It was not a full blown vertigo attack like the one that started this nightmare but a more subtle mini spinning sensation. I don't know, its so hard to describe the sensation I feel but I suspect many of you understand what I am trying to say (I hope).
So I have spent the last week in a disorientated hell. All my visual symptoms are increased as are the balance sensations. The floor feels like it's throwing me around as I walk or stand, my vision is in and out of focus,stiff,static like and difficult to fixate. My head is full with heaviness and swaying pressure causing very small amounts of head movement to produce a real shock to the system. Hell, even stirring a bowl of porridge this morning made me tense my legs so hard in order to remain standing where I was instead of flying across the room.
I feel very detached from the world (surreal) and feel like I am looking right through everything I focus my eyes upon. I can't quite get my vision to connect and remain stable. I hope I have made some sort of sense. It has got to be one of the most difficult illnesses to try and describe but you guys already know that.
Swimmyhead
It's been quite a crappy week in all honesty. I sit here typing this feeling extremely groggy and disorientated. I have only been awake one miserable hour and mornings don't tend to be good balance wise anyway after all that lying down we call sleeping ( isn't sleep supposed to recharge and refresh our battery's) not in my case or so it seems. I guess my symptoms have been much more intense again these past several days which I can't say has been easy. A week last Thursday I was doing ok-ish but by Thursday evening all my visual and balance issues came back full force and actually frightened me a little more than usual as the symptoms felt a little different than they have for quite sometime. The difference was that I experienced what I can only call as mini spins ( I don't know how else to describe the experience). I felt on edge, confused and disorientated.
Basically that rotational,spinning sensation increased to a different level a very uncomfortable level. An intensity reminiscent of my early years living with this thing. I spent the evening standing up then sitting down only to stand up again and walk around the house trying to get some sense of normality and grounding. It's a very disconcerting experience only fellow sufferers will understand.The spinning sensation was to the left. This rotational feeling was so prominent back in the early years of my dizzy journey. I do not miss it.
It was not a full blown vertigo attack like the one that started this nightmare but a more subtle mini spinning sensation. I don't know, its so hard to describe the sensation I feel but I suspect many of you understand what I am trying to say (I hope).
So I have spent the last week in a disorientated hell. All my visual symptoms are increased as are the balance sensations. The floor feels like it's throwing me around as I walk or stand, my vision is in and out of focus,stiff,static like and difficult to fixate. My head is full with heaviness and swaying pressure causing very small amounts of head movement to produce a real shock to the system. Hell, even stirring a bowl of porridge this morning made me tense my legs so hard in order to remain standing where I was instead of flying across the room.
I feel very detached from the world (surreal) and feel like I am looking right through everything I focus my eyes upon. I can't quite get my vision to connect and remain stable. I hope I have made some sort of sense. It has got to be one of the most difficult illnesses to try and describe but you guys already know that.
Swimmyhead
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