Hi guys
It is 9 years ago today that I woke up to that spinning vertigo attack that basically changed my life. What the hell happened?
This past month has been more intense and I'm still very dizzy and off balance. Yesterday I increased my dosage of Gabapentin to 1200mg and will stay at this dosage for 2 weeks then I will increase it to 1500mg. I have not yet felt any positive effects since increasing the dosage from 600mg to 900mg but who knows maybe a miracle will occur the higher I go. Fingers and toes crossed.
Take care guys
Swimmyhead
Wednesday 25 May 2016
Sunday 15 May 2016
Extremely Dizzy
Hi Guys
I have been feeling extremely dizzy this past 3-4 weeks and that constant heavy and foggy head is making all symptoms worse. I am also waking up every morning feeling exhausted. I open my eyes and all I want to do is go back to sleep because my body feels so fatigued. I sleep for about 6-7 hours a night but it doesn't stop the lethargy. If the head pressure would just calm a little then usually my other symptoms such as balance and vision tracking etc will improve somewhat.
I have begun experimenting with the dosage of one of my current medications (Gabapentin). I have been taking this medication at the same dosage for the last 4 years but my new doctor has told me that it's about time we try something new. He has asked me to increase the dosage from my current 600mg a day to 1800mg a day(max dosage) over the next several weeks then to go back and see him. He said that if we reach maximum dosage and there still isn't any improvement then it's time to stop taking it and try something different. No point in flogging a dead horse. I think he said I could try a medication called toprimate but I am not absolutely certain. Anyway, I started upping the dose last week and am now taking 900mg at this moment. I have felt no change as of yet. I'm just glad I have found a doctor finally willing to experiment and not just send me on my way leaving me lost.
I am excited but also nervous about increasing the dosage because of possible side effects but it's a chance I have to take. It also scares me a little the thought of having to stop taking my familiar medication if the maximum dosage does not help ( I'm praying it will,imagine that). I have been taking these medications for 4 years and have had a small improvement of sorts, but they have not cured me or given me any great relief but still the idea of stopping and trying a new drug with it's new possible side effects and non guarantee of working is a touch concerning.
Who knows maybe the increase will provide a more therapeutic effect and be the answer to my prayers. Two months from now I might be dizzy/vertigo free performing cartwheels of joy and feeling alive for the first time in 9 years. That truly would be something. Ill keep you guys updated.
Swimmyhead
I have been feeling extremely dizzy this past 3-4 weeks and that constant heavy and foggy head is making all symptoms worse. I am also waking up every morning feeling exhausted. I open my eyes and all I want to do is go back to sleep because my body feels so fatigued. I sleep for about 6-7 hours a night but it doesn't stop the lethargy. If the head pressure would just calm a little then usually my other symptoms such as balance and vision tracking etc will improve somewhat.
I have begun experimenting with the dosage of one of my current medications (Gabapentin). I have been taking this medication at the same dosage for the last 4 years but my new doctor has told me that it's about time we try something new. He has asked me to increase the dosage from my current 600mg a day to 1800mg a day(max dosage) over the next several weeks then to go back and see him. He said that if we reach maximum dosage and there still isn't any improvement then it's time to stop taking it and try something different. No point in flogging a dead horse. I think he said I could try a medication called toprimate but I am not absolutely certain. Anyway, I started upping the dose last week and am now taking 900mg at this moment. I have felt no change as of yet. I'm just glad I have found a doctor finally willing to experiment and not just send me on my way leaving me lost.
I am excited but also nervous about increasing the dosage because of possible side effects but it's a chance I have to take. It also scares me a little the thought of having to stop taking my familiar medication if the maximum dosage does not help ( I'm praying it will,imagine that). I have been taking these medications for 4 years and have had a small improvement of sorts, but they have not cured me or given me any great relief but still the idea of stopping and trying a new drug with it's new possible side effects and non guarantee of working is a touch concerning.
Who knows maybe the increase will provide a more therapeutic effect and be the answer to my prayers. Two months from now I might be dizzy/vertigo free performing cartwheels of joy and feeling alive for the first time in 9 years. That truly would be something. Ill keep you guys updated.
Swimmyhead
Wednesday 11 May 2016
Brave Woman, aged 23, Battling incurable condition Ehlers Danlos Syndrome
Hi guys
I wanted to share a story that I have just come across about a young woman named Seanin who is only 23 years of age and is battling a very serious condition known as Ehlers Danlos Syndrome. She lives in the UK but the treatment she needs can only be carried out in the USA. She does suffer with migraines and dizziness but I guess these symptoms pale in comparison to the pain and other symptoms she has to deal with. Her family are reaching out to people to join the Fight on Campaign for Seanin in the hope they can help with fundraising efforts and new ideas. Below are links her full story and to her Fight on Campaign profile. I truly hope she gets all the help she needs. Life can be so cruel.
Full Story - http://bit.ly/1Tb5G5A
Fight On Campaign - http://bit.ly/24LArmH
I wanted to share a story that I have just come across about a young woman named Seanin who is only 23 years of age and is battling a very serious condition known as Ehlers Danlos Syndrome. She lives in the UK but the treatment she needs can only be carried out in the USA. She does suffer with migraines and dizziness but I guess these symptoms pale in comparison to the pain and other symptoms she has to deal with. Her family are reaching out to people to join the Fight on Campaign for Seanin in the hope they can help with fundraising efforts and new ideas. Below are links her full story and to her Fight on Campaign profile. I truly hope she gets all the help she needs. Life can be so cruel.
Full Story - http://bit.ly/1Tb5G5A
Fight On Campaign - http://bit.ly/24LArmH
Swimmyhead
Subscribe to:
Posts (Atom)