Hi guys
I am back up to 50mg of nortriptyline for my suspected vestibular migraine but it's still hard to say if I feel any different. I guess there is some improvement for some of the time whilst on the medication but that is all I can say. It's certainly no fix.The intention was to go much higher in dosage but my doctor suddenly no longer thinks it would be beneficial.
He is beginning to doubt my vestibular migraine diagnoses as he feels at 50mg I should really be seeing significant improvement. That coupled with the fact that he recently read an article about a vestibular condition called PPPD (Persistent-postural- perceptual dizziness). He read it and immediately thought about my situation. I must admit I strongly relate to the symptoms. It also appears that vestibular migraine can coexist along side PPPD. It's all very confusing and as frustrating as ever. I honestly have no clue what's wrong with me. I never really have.
The good news is that PPPD can be effectively treated using SSRI's and SNRI's. The bad news is that there seems to be a decent chance of unwanted side effects. However this is probably the route I am going to go down sometime in the near future. I don't want to write off and completely abandon my migraine diagnoses as there are still many anti migraine preventatives I have yet to try but maybe PPPD is worth investigating.
I think more vestibular testing is in order since I haven't had any sort of medical tests/investigations in about 9 years now. I have read about one stop balance clinics over here in the UK that until recently I never knew existed. They do all the necessary vestibular testing in one visit and give a diagnoses the same day. Some of the test I have not had or been offered in 11 years of suffering. So this is my plan and from such a visit I will get a more up to date/accurate diagnoses and we go from there. Maybe PPPD will be my new diagnoses. Perhaps it will still be vestibular migraine or something else, who knows. It's about time I had a solid answer of what it is I am suffering from.
Below is a link about PPPD for anybody who is interested:
https://pn.bmj.com/content/18/1/5
Swimmyhead
I am back up to 50mg of nortriptyline for my suspected vestibular migraine but it's still hard to say if I feel any different. I guess there is some improvement for some of the time whilst on the medication but that is all I can say. It's certainly no fix.The intention was to go much higher in dosage but my doctor suddenly no longer thinks it would be beneficial.
He is beginning to doubt my vestibular migraine diagnoses as he feels at 50mg I should really be seeing significant improvement. That coupled with the fact that he recently read an article about a vestibular condition called PPPD (Persistent-postural- perceptual dizziness). He read it and immediately thought about my situation. I must admit I strongly relate to the symptoms. It also appears that vestibular migraine can coexist along side PPPD. It's all very confusing and as frustrating as ever. I honestly have no clue what's wrong with me. I never really have.
The good news is that PPPD can be effectively treated using SSRI's and SNRI's. The bad news is that there seems to be a decent chance of unwanted side effects. However this is probably the route I am going to go down sometime in the near future. I don't want to write off and completely abandon my migraine diagnoses as there are still many anti migraine preventatives I have yet to try but maybe PPPD is worth investigating.
I think more vestibular testing is in order since I haven't had any sort of medical tests/investigations in about 9 years now. I have read about one stop balance clinics over here in the UK that until recently I never knew existed. They do all the necessary vestibular testing in one visit and give a diagnoses the same day. Some of the test I have not had or been offered in 11 years of suffering. So this is my plan and from such a visit I will get a more up to date/accurate diagnoses and we go from there. Maybe PPPD will be my new diagnoses. Perhaps it will still be vestibular migraine or something else, who knows. It's about time I had a solid answer of what it is I am suffering from.
Below is a link about PPPD for anybody who is interested:
https://pn.bmj.com/content/18/1/5
Swimmyhead
