Hi Guys
This week a friend of mine who is a nurse called me and told me she had been talking to a neurologist she is currently working with about my balance problem. To her surprise he told her a story about a young guy who he treated in the past who had suffered the same dizzy fate. This guy was convinced after 5 years he would never get better because everything he tried simply did not work (sounds very familiar). He could not work and didn't meet friends. He simply was housebound. Anyway to cut a long story short they tried him on a medication that can actually be purchased over the counter and unbelievably within 2 weeks he was symptom free. After 5 years of hell and no hope he is now working and loving life.
He told my nurse friend the name of the medication and of course she told me. Now it's not my place to be talking about different medications since I am not a doctor and I do not want anyone reading this to run off and buy the medication and harm themselves. So I am not going to name the medication just yet ( I will once I try it, I promise you guys).
So to be on the safe side I went and saw my doctor and asked about this particular medication and she was happy to give it a shot ( I was so excited). However the excitement was short lived as it seems this particular medication may cause severe side effects when combined with my current meds. However there is still good news in that my doctor is willing to prescribe me this but I must ween myself off of the meds I am currently taking(Woo Hoo).
I also asked if there were any meds that I might try that act as a vestibular suppressant something that could help mask or decrease the sensation of vertigo. Since I have never ever been given any medication to help the severe sensations I live with. So in the meantime I have been prescribed betahistine. Which many of you guys have probably tried especially meneire's patients.I have never tried this before but have obviously heard of it. I am hoping it will help mask my symptoms that truly would be something.
At this point in my journey (8.5 years) I am willing to try anything even if it only masks the cruel sensations. So there you go, I'm going to try betahistine for a month or so then ween myself off of my current meds and try the medication that gave that young man his life back.
There is hope
Swimmyhead
